that sounds great Shawna. Good Luck with Phase 2. Until now Lucas did an awesome job and I am sure he will all the way to the end.

:sad: Hi Shawna, still dragging, see I have been given unlimited doses on one of my puffers, but I am not going into status asthmaticus, rest assured!! Please send me the link to your IWK telethon and I shall donate, just finished a fund raiser for my small animal rescue group. Lucas sounds like the best little patient, does he have a gastrostomy or nasogastric tube for feeding purposes? Hang in there, it sounds like things are getting better, it just has to take a S L O W course!

good to hear things are doing well Shawna and Lucas high 5 you are a BIG boy!!

I'm so glad to hear things seem to be going good.Can't wait for the photos if you can get them.

I think you are amazing and handleing your tough time with love,pride and dignity.My positive thoughts and prayers are still with you.

Just posting a photo of my friends possum called "precious" like your budgie.

Thought Lucas might like it aswell.

Shawna, I am so pleased to keep hearing about how well he is doing with his treatments. He is dealing with this with so much strength and maturity. All my love, positive vibes and prayers continue to come your way.

 

Western Australia has for many years had the most successful telethon in support of our children's hospital than anywhere else in Australia. I believe per capita it is the the most succesful worldwide. A lot of money goes into childhood research as well. It is not held until October, but I will donate extra this year as a tribute to Lucas. I look forward to seeing any photos you may have of his presentation on Sunday.

 

 

Aly

Hi Shawna, still dragging, see I have been given unlimited doses on one of my puffers, but I am not going into status asthmaticus, rest assured!! Please send me the link to your IWK telethon and I shall donate, just finished a fund raiser for my small animal rescue group. Lucas sounds like the best little patient, does he have a gastrostomy or nasogastric tube for feeding purposes? Hang in there, it sounds like things are getting better, it just has to take a S L O W course! :hap:

 

 

Your asthma sounds pretty bad Phoebe. Lucas has asthma too but right now you'd never know it - thank goodness. His is always bad in the winter when he gets colds or when he is around dogs. Take care of yourself and make sure you take those puffers when you need them.

 

Thanks for considering donating to the IWK. It is an amazing hospital and serves the maritime provinces of NB, NS, and PEI. We always donate monthly and this year I will be directing my donations to the brain tumour clinic and the oncology department. Here is a link to the foundation - http://www.iwkfoundation.org/index.cfm?obj...10ECB7312264623

 

Lucas has a g-tube that is convertible to a j-tube if necessary. He is scheduled for surgery on July 24 to have the tube replaced with a button. He will be much happier then because he really dislikes the tube. Can't say I blame him. The radiation techs say that he is really good about his tube compared to some kids.

 

 

 

 

 

Shawna, I am so pleased to keep hearing about how well he is doing with his treatments. He is dealing with this with so much strength and maturity. All my love, positive vibes and prayers continue to come your way.

 

Western Australia has for many years had the most successful telethon in support of our children's hospital than anywhere else in Australia. I believe per capita it is the the most succesful worldwide. A lot of money goes into childhood research as well. It is not held until October, but I will donate extra this year as a tribute to Lucas. I look forward to seeing any photos you may have of his presentation on Sunday.

 

 

Aly

 

 

Aly, thanks. I think that donations to children's hospitals are the best charitable donations anyone can make. Our children are our future. I've seen so many sick kids over the last few months and it breaks my heart. These facilities are focussed on health but also on all the needs of children. They don't forget about important aspects like play. Our donations help them buy important equipment, but also help with things like playrooms, toys, etc. I encourage everyone to consider donating to their local children's hospitals when they decide on their annual charitable donations. Thanks again!!!! xoxox

 

Thanks to everyone else for your continued kind words, thoughs and prayers.

:hap: Great, will direct my donation to the oncology department.

Lucas started losing his hair today. I knew it was coming, yet is very hard to accept when it actually starts happening. My husband is going to shave his head as long as Lucas has no hair. Although Lucas knew it was coming, I think he is a little sad about it too. The last few days have been rough on him emotionally. Lots of anger, tears, etc. It breaks my heart.

I had a friend who lost her her hair through chemo after breast cancer. A group of us took to buying her funny hats to wear. She loved it :hap: .........after awhile she decorated a whole wall in her house with these hats. It took the seriousness of it away and turned it into a fun thing she could choose which hat to wear ....both herself and others would laugh with her and it took the "pressure off" ....she would wear a witches hat with fake hair or a firemans helmet. Oh, well. It was good at the time. :budgiedance:

hugs Lucas, Tim shaved his head way back so bald is cool with the guy :budgiedance: you are so cute and it will look even cuter. :hap:

Good on your hubby for shaving too. Losing his hair is a real reminder of exactly what he is going through I was losing my hair in chunks when I had a disease a few years back, and I remember how awful it was. I never went bald though, thank goodness, but I did put on 45 kilos (99 pounds) in 15 months from the steroids I was taking (unfortunately I didn't lose it before ending up in a wheelchair, so it is probably stuck with me now).

 

Strength and love to get through this is coming to you all.

 

 

Feathers.

Today was a much better day. He actually ate a little and his spirits were a bit cheerier. He actually got a chuckle out of the chunks of hair coming out.

 

Here are a few more pics for you.

 

Lucas being a brave boy while getting his port accessed for bloodwork and chemo.

 

And here are the first signs of hair loss.

Awe I love those BIG beautiful eyes, I bet the nurses LOVE him. I love the look he is giving that port skeptical but a GOOD boy. Hugs to you Shawna and your family.

Aww what a brave little man. Hugs to you and your family Shawna.

Such a lot for a little man to go through. He has my greatest admiration

Lucas' presentation on the telethon went quite well. He was so tired though. We had to get up at 6:30 AM.

 

Here are a few pictures for you....

 

Lucas with the cheque from his school.

 

Lucas talking to Maria Panopalis, the host of our local Breakfast Television show about what his school did to raise money for the telethon.

I agree Lucas has beautiful eyes.He is an amazing boy.Thanks for the update and know that you and your family are in our thoughts and prayers.

oh how neat Shawna thank you for sharing those pics

What a brave little soldier you have there! Thanks for the updates, I'm thinking of you all a lot.

Thanks Shawna. looks like Lucas is doing very well, will do my promised donation tomorrow. (if I ever survive the heat wave here!!!)

Shawna,

My niece who has spina bifida was granted a wish through the "Make a Wish Foundation" where they make some dreams come true for sick little boys like Lucas is right now. It would be really nice to see some of his dreams come true and maybe you could look into it.

 

Here is their link

http://www.wish.org/refer

Great photos. I bet the excitement outweighed the tiredness, he looks great and very proud to be able to present the money.

 

 

Feathers.

Shawna,

My niece who has spina bifida was granted a wish through the "Make a Wish Foundation" where they make some dreams come true for sick little boys like Lucas is right now. It would be really nice to see some of his dreams come true and maybe you could look into it.

 

Here is their link

http://www.wish.org/refer

 

 

Hi Karen,

Thanks. Lucas knows that he will have an opportunity for a wish after his treatment is finished. The staff in the brain tumour clinic informed us that early on. They showed us the "wall of fame" of all the brain tumour patients and many of the pics are of the kics on their wish trips or with their wish items.

 

I have no idea what Lucas will want but I'm hoping that it will be a trip as I think we'll all really need a good vacation and some fun after the year we will have had. What did your niece choose as her wish?

Shawna,

My niece who has spina bifida was granted a wish through the "Make a Wish Foundation" where they make some dreams come true for sick little boys like Lucas is right now. It would be really nice to see some of his dreams come true and maybe you could look into it.

 

Here is their link

http://www.wish.org/refer

 

 

Hi Karen,

Thanks. Lucas knows that he will have an opportunity for a wish after his treatment is finished. The staff in the brain tumour clinic informed us that early on. They showed us the "wall of fame" of all the brain tumour patients and many of the pics are of the kics on their wish trips or with their wish items.

 

I have no idea what Lucas will want but I'm hoping that it will be a trip as I think we'll all really need a good vacation and some fun after the year we will have had. What did your niece choose as her wish?

My niece was mad keen on the TV show the PONY CLUB. She flew interstate, got to meet the cast of THE PONY CLUB and go out to lunch with them at a nice restaurant and was collected in a limousine, got lots of lovely gifts and much more. The whole thing was video-ed for her to keep also.

My husband and I are new to these forums, but we have been moved to tears by the strength and determination shown by both Shawna and Lucas in the face of such adversity. You are both amazing, amazing inspirations!! Our thoughts, prayers and hopes will be with you from this day forward. To your brave little man Shawna, he is truly a little battler, you must be so proud of him.

 

Also, the love and support of everyone on the forums is overwhelming, let's ope it helps you through these troubled times.