Jump to content
Shawna

Lucas Is Very Very Sick

Recommended Posts

Shawna,

My niece who has spina bifida was granted a wish through the "Make a Wish Foundation" where they make some dreams come true for sick little boys like Lucas is right now. It would be really nice to see some of his dreams come true and maybe you could look into it. :)

 

Here is their link

http://www.wish.org/refer

 

 

Hi Karen,

Thanks. Lucas knows that he will have an opportunity for a wish after his treatment is finished. The staff in the brain tumour clinic informed us that early on. They showed us the "wall of fame" of all the brain tumour patients and many of the pics are of the kics on their wish trips or with their wish items.

 

I have no idea what Lucas will want but I'm hoping that it will be a trip as I think we'll all really need a good vacation and some fun after the year we will have had. What did your niece choose as her wish?

My niece was mad keen on the TV show the PONY CLUB. She flew interstate, got to meet the cast of THE PONY CLUB and go out to lunch with them at a nice restaurant and was collected in a limousine, got lots of lovely gifts and much more. The whole thing was video-ed for her to keep also. :D

 

How wonderful for her! And nice that she has a keepsake of the special day. Thanks for sharing that.

 

 

My husband and I are new to these forums, but we have been moved to tears by the strength and determination shown by both Shawna and Lucas in the face of such adversity. You are both amazing, amazing inspirations!! Our thoughts, prayers and hopes will be with you from this day forward. To your brave little man Shawna, he is truly a little battler, you must be so proud of him.

 

Also, the love and support of everyone on the forums is overwhelming, let's ope it helps you through these troubled times.

 

Welcome to the forums. It really is a fantastic place to learn about and talk budgies. I learned everything I know here.

 

Thanks for your kind words and prayers. We appreciate each and every one of them.

Share this post


Link to post
Share on other sites

We had an up and down week this past week. Some days were pretty good. One day Lucas even ate supper which was a thrill. He has 11 radiation appointments to go and then we get our 4 week break. We are all looking forward to that.

 

Lucas has been missing the kids he goes to school with. We live in a rural place with only one child close by. Today his cousin Zach came for a visit and he was THRILLED. They had fun playing Xbox, flying the Dragonfly, and playing their gameboys. Lucas was content to play with or beside him. It didn't matter as long as he was here.

 

Here is a picture of the two of them with their gameboys. His hair is all gone except for some fuzz. I think he looks cute.

2007-06-08003Custom.jpg

Share this post


Link to post
Share on other sites
Guest Phoebe
;) He sure does Shawna! And there are those beautiful, blue eyes again! :D

Share this post


Link to post
Share on other sites

What a winning smile Lucas has. It lights up his whole face. :wub:

Share this post


Link to post
Share on other sites
What a winning smile Lucas has. It lights up his whole face.

 

 

It sure does, he looks so gorgeous. It is so great to capture these moments in amongst all the angst where he is able to be so happy and carefree.

 

You all continue to be in my thoughts and prayers and we are still sending as much positive energy as we can your way.

 

 

Feathers.

Share this post


Link to post
Share on other sites

he is a beautiful boy Shawna....hugs on the down days :) but it is wonderful to hear he is having good days too.

Share this post


Link to post
Share on other sites

Lucas had a pretty good week. And we are counting down the final radiaition treatments. Only 6 to go. He has some tissue granulation around his tube. We'll have to keep an eye on it as it can grow. I guess it is treated with a wart removal type of treatment so I hope that it doesn't get too big and bothersome.

 

He got to visit his school this week. It is the first time he has seen the kids in almost two months. He was actually quite reserved at first but I can understand as he was basically swarmed by all of the kids. It didn't take long though for him to settle back in. The teacher let the kids run amuck for our visit.

 

Here is a picture of him holding one of the butterflies (or moths?) they raised in the classroom.

lucatschoolbirdsetc007Custom.jpg

Share this post


Link to post
Share on other sites

thank you for the update, I have been thinking about you. How neat, I remember they did butterflies in 1st grade with Aaron.

Share this post


Link to post
Share on other sites

I love kids, they are so accepting. It's great that he got to see the kids before summer holidays. I pray that the rest of his treatments go well.

 

*hugz*

 

Aly

Share this post


Link to post
Share on other sites
Guest Phoebe
:P That's good that Lucas got to return to the classroom before summerbreak, it sounds like he is doing very well!! :sad:

Share this post


Link to post
Share on other sites

Hi Shawna,Lucas looks full of spirit and looks handsome with his new hairstyle.Only 6 treatments and I hope all goes well.Keep your chin up and know that I am sending thoughts your way for your family.

Thanks for updateing.

Share this post


Link to post
Share on other sites

I can't believe we have only one radiation treatment life. I remember when we started 30 seemed like so many. Lucas has tolerated everything very well. The radiation oncologist is very pleased with how Lucas' treatments have gone.

 

We start a nice break from all treatments on Monday. We return for some meetings and a small procedure - having the g-tube replaced around the 25th of July, and then on the 30th he is admitted for his first of 9 cycles of chemo. Hopefully he will tolerate it well and we will only have to stay a couple of days.

 

We don't have much planned for the month off other than spending time in the pool, visiting with family, etc. I don't want to be too far from home. We are tired from all of the trips back and forth to Halifax, so staying home sounds good to me.

 

Thanks everyone again for all of the postive thoughts, prayers, etc. I believe they have helped us on this journey.

Edited by Shawna

Share this post


Link to post
Share on other sites

WOW time simply flies, that is wonderful :)

Share this post


Link to post
Share on other sites
Guest Phoebe
:) Have a nice summer with your family Shawna, glad the treatments are almost done! :D

Share this post


Link to post
Share on other sites

If I were closer I'd just hug you. :angel1: What strength and determination you both have. I'm so glad things are going well. Hugs and prayers still being sent your way...

Share this post


Link to post
Share on other sites

l just saw this post and l was amazed to see how strong your little boy Lucas is to go through this battle at such a young tender age and l can't even start to imagine what it is like for you to go through this but l know that it is tough to see your love one go through this . l'm praying for you , Lucas and your family . (((((hugs)))))

Share this post


Link to post
Share on other sites

A quick update - Lucas has had a good week and is very glad that his radiation treatments are over. So are Randy and I - no more driving to Halifax. His is quite tired but is still feeling really good. And his appetite is slowly coming back. He still gets formula through his tube at night, but we have cut back one box. I'm hoping that over the next week or so we can go down to one box. The weather has been great so he has been having fun in the pool. And his cousin has been visiting so he has been having fun with him.

Share this post


Link to post
Share on other sites

Wonderful news Shawna...know things can get back to being somewhat consistent and normal :D

Share this post


Link to post
Share on other sites

Excellent news, Shawna, now that he has no more radiation coming up he can concentrate on getting his strength up and having even more fun with his friends and cousins.

 

*luv and hugz to the whole family*

 

 

Aly

Share this post


Link to post
Share on other sites

Wonderful news Shawna,glad Lucas is having some time as a normal child having fun.Hope evrything keeps going well and know that you and your family are in our thoughts and prayers everyday.

Share this post


Link to post
Share on other sites

Hi Gang, It's been awhile. Lucas was admitted today to start his first "big" chemo. He so far has tolerated it well - no vomiting at all. Actually he ate quite well which amazed me. Last week we go the best news. His MRI (first since surgery) showed no tumour growth in the brain or the spine. He had been very tired for a few weeks and was quite wobbly. We were terrified the tumour was back. But our prayers were answered. Thanks everyone for your positive vibes, prayers, thoughts, best wishes. We are confident our little cancer warrior - as he likes to be known now - is going to beat the monster.

Share this post


Link to post
Share on other sites

I'm so glad the tumour hasn't come back!! ;)

Share this post


Link to post
Share on other sites
Guest Phoebe
:) Just look forward Lucas and maintain that AWESOME attitude!! :D

Share this post


Link to post
Share on other sites

that is great news !!!

l'm continuing to pray for Lucas and you , your family .

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...

×
×
  • Create New...